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Kula da ƙafar EB: shawarwarin podiatry da jagororin

Likitan jinya sun ƙware a fannin kiwon lafiya na ƙafa, idon sawu da ƙafa. Suna inganta motsin mutane, 'yancin kai da ingancin rayuwa, kuma ƙwarewar da suke bayarwa na iya zama da amfani ga mutanen da ke zaune tare da epidermolysis bullosa (EB).

Wannan shafin yana ba da wasu shawarwari masu amfani kan yadda za ku kula da ƙafafunku idan kuna zaune tare da EB, da kuma bayani kan inda za ku iya samun ƙarin albarkatu da tallafi.

 

Contents

1. Yadda ake nemo ƙwararren likita na EB.

2. Sharuɗɗa don kula da ƙafar EB. Wannan ya haɗa da jagororin taimako na shawarwarin takalma ga manya da yara masu EB, kula da ƙusa dystrophic, sauran hanyoyin kula da ƙafafunku, da ƙari.

3. Nasiha daga membobinmu. Dubi shawara daga membobinmu game da samfuran takalman da suka fi so, hanyoyin hana kumburi, suturar da za a yi amfani da su, da ƙari.

Yadda ake nemo ƙwararren likita na EB

Idan kuna ƙarƙashin kulawar ƙungiyar kwararrun kiwon lafiya ta EB, to kuna iya neman a tura ku zuwa likitan podiatrist.

Ƙungiyar kula da lafiyar ku ta EB ko GP na iya yin la'akari da tura ku zuwa sabis na kiwon lafiya na NHS na gida don ci gaba da jiyya. Koyaya, yankuna daban-daban na ƙasar suna da sharuɗɗan cancanta daban-daban waɗanda za su iya haifar da ƙi da neman ku. Idan wannan ya faru gare ku, wani lokaci yana iya zama da amfani don gwadawa da nemo likita mai zaman kansa na gida don taimakawa tare da buƙatun kula da ƙafarku.

Don tabbatar da likitan likitancin ku ya ƙware sosai, da fatan za a tabbatar an yi musu rajista da Royal College of Podiatrists (RCPod).

Nemo Likitan Kaya

Idan kana ƙarƙashin kulawar likitan motsa jiki a cibiyar EB ɗin ku a Birmingham ko London, ƙila za su iya yin hulɗa tare da likitan wasan motsa jiki na gida kan yadda mafi kyawun kula da ƙafafunku.

Sharuɗɗa don kula da ƙafar EB

Akwai da dama jagororin taimako don kulawar ƙafar EB a kan gidan yanar gizon DEBRA International. Waɗannan jagororin suna raba bayani mai amfani a cikin tsari mai sauƙin karantawa akan fagage masu zuwa:

  • Shawarar takalma ga manya da ke zaune tare da EB
  • Shawarar takalma ga iyaye masu kula da yaron da ke zaune tare da EB
    Takaddun gaskiya na shawara game da ƙafar ƙafa don ƙafafun EB, tare da bayani daga likitan podiat na EB Dr Tariq Khan.
    Takaddun gaskiya na podiatry don ƙafafun EB.
  • Dystrophic ƙusa kula
  • Hyperkeratosis (calus) kulawa ga manya da ke zaune tare da EB 
 
Takardun gaskiya na podiatry

Mun kuma ƙirƙiri wannan takardar gaskiyar kan yadda za a kula da ƙafar EB daga EB Podiatrist Dr Khan, jagoran aikin don haɓaka shirin horar da ciwon kai na EB. Wannan takardar gaskiyar ta ƙunshi bayyani na shawarwari kan takalma, safa, da sauran hanyoyin taimakawa tare da lafiyar ƙafar EB.

 

Karanta a nan

 

Nasiha daga membobin mu

Membobinmu da ke da kwarewar rayuwa na EB kwanan nan sun ba da wasu abubuwan da suka samu an taimaka musu a wani taron bita a taron karshen mako na Membobin DEBRA UK. Muna son ci gaba da haɓaka raba waɗannan abubuwan rayuwa da shawarwari don lafiyar ƙafar EB, don haka da fatan za a tuntuɓe mu a feedback@debra.org.uk kuma raba abin da ke aiki a gare ku. Zai iya yin bambanci ga sauran membobin EB ɗin kuma.

Waɗannan na iya zama zaɓi na mutum ɗaya. Zaɓuɓɓuka masu kyauta da na halitta, tare da ƙwallon ƙafar salon wasanni, sun fi shahara kamar wasu mafi kyawun safa ga mutanen da ke da EB. Waɗannan su ne wasu abubuwan da membobinmu suka fi so:

  • Safa na Yatsu
  • Bam Bamboo safa - (wasu safa na bamboo ana samun su akan babban titi)
  • Safa na azurfa - carnation 
  • Merino Wool Socks ko Merino ulu tsakanin yatsun kafa

Duk da yake ba za mu iya ba da shawarar samfuran ba, kamar yadda muka san kowa ya bambanta kuma koyaushe yana ba ku shawarar gwada sabbin takalma da farko kuma ku bi jagora a cikin jagororin takalma da aka ambata a sama, za mu iya raba shawarwari daga al'ummar EB waɗanda za su iya taimaka muku.

Membobinmu sun raba wasu samfuran takalman da suka fi so idan ya zo ga takalman abokantaka na EB. Wasu daga cikin waɗannan kera na iya zama masu tsada kuma ana iya samun madadin manyan titina. Hakanan muna iya yin la'akari da ba ku kyauta tare da gudummawar kashewa ɗaya don gwada takalmin daban ta tallafin tallafin mu na DEBRA UK:

  • Barefoot 
  • Abin takaici 
  • Abun zane 
  • Ciki 
  • Kwayoyi 
  • Geox 
  • Nike 
  • FitFlops
  • Wanke ƙafa a cikin ƙanƙara (kafin ko bayan tafiya) 
  • Fan ko gel tabarma karkashin tebur tare da kashe takalmi 
  • Ajiye takalma/safa a cikin firiji
  • Amfani da garin masara azaman 'talcum foda' - Masana kiwon lafiya da marasa lafiya sun kuma bayar da rahoton fa'idar yin amfani da fulawar masara a tafin ƙafafu da kuma tsakanin yatsu don taimakawa wajen sarrafa danshi mai yawa da rage juzu'i. Wannan na iya taimakawa wajen sarrafa kumburin yau da kullun.
  • Coolsorb insoles - insoles wanda ya dace da kowane girman takalmi kuma yana taimakawa don kiyaye ƙafafu da sanyi da kwanciyar hankali tare da haɓakar girgiza da kwantar da hankali.
  • Dry skin magarya (gilashin zinari) – man shafawa don taimakawa fata da rage gogayya.

Kamfanonin bandeji da sutura masu zuwa za su iya tallafa wa mutanen da ke zaune tare da EB kuma sun shahara tare da membobinmu. Koyaya, yakamata koyaushe ku yi magana da ƙungiyar kula da lafiyar ku ta EB don shawarar da ta dace a gare ku. Da fatan za a ziyarci shafin mu na kula da lafiya idan ba ku riga kun kasance ƙarƙashin kulawar ƙwararrun ƙungiyar kiwon lafiya ta EB ba don samun taimako tare da mai ba da shawara.

  • Bullens (bayar da bandeji) - Bullens suna da lasisin Burtaniya don Spycra, suturar rigakafin rikice-rikice, wanda ke samuwa akan takardar sayan magani.  
  • Silipos Gel Tubing - Daya daga cikin membobinmu ya ba da shawarar cewa wannan gel tubing yana taimakawa musamman wajen rage tashin hankali lokacin sanya takalma.
  • Mepilex Border – Waɗannan riguna masu sassauƙa suna samuwa ne kawai akan takardar sayan magani.