Tsallake zuwa content

Jiyya & Gudanarwa

Wata ma'aikaciyar jinya ta EB tana magana da mara lafiya a ɗaya daga cikin cibiyoyin EB na kyau.

Kula da fata da rauni don EB: Tukwici da albarkatu

Nasihu da albarkatu don sarrafa kulawar rauni don EB, kamar yadda ake kula da blisters da kula da ciwo.
Ya koyi
Wani mai EB yana da riguna ya canza ta wurin mai kulawa.

Jin zafi da ƙaiƙayi ga marasa lafiya na EB

Jagora kan sarrafa ƙaiƙayi da EB raɗaɗin zafi, taimako don ingantacciyar barci, bayani kan tallafin tallafin mu, da ƙari.
Ya koyi
Rumbun dakin gwaje-gwaje cike da kwalabe, kwantena, da kayan aikin lab iri-iri.

Jiyya na EB na yanzu a Burtaniya

Wannan shafin shine inda za mu raba bayanai game da sababbin jiyya na EB yayin da suke samuwa don amfani a Burtaniya.
Ya koyi
Shirye-shiryen yankan takarda mai siffa kamar ƙafafu, mai lakabi tare da shawarwari daga membobin da ke zaune tare da EB.

Kula da ƙafar EB: shawarwarin podiatry da jagororin

Shawarar jin daɗi ga mutanen da ke da EB, gami da albarkatun tallafi, jagora mai amfani don kula da ƙafafu da lafiya, da shawarwari daga membobinmu.
Ya koyi
Mace mai ciki tare da abokiyar zamanta.

Gudanar da ciki da haihuwa tare da EB

Bayani da albarkatu don taimaka muku sarrafa ciki, haihuwa, da haihuwa tare da EB.
Ya koyi
Mutum yana motsa jiki ta amfani da tsani mai ƙarfi a ƙasa, tare da ɗaga ƙafa ɗaya. Ƙwallon kwanciyar hankali da kayan aikin motsa jiki suna bayyane a bango.

Physiotherapy don EB

Bayanin jagororin ilimin motsa jiki da shawarwari ga mutanen da ke zaune tare da EB.
Ya koyi
Silhouette na mutum zaune a gefen wani tsari, yana kallon shimfidar wuri a faɗuwar rana.

Lafiyar zuciya

Nasihu, bayanai da albarkatu don taimakawa tallafawa jin daɗin rai ga al'ummar EB.
Ya koyi
Mutum yana barci kansa a hannu a tebur tare da kwamfutar tafi-da-gidanka, littattafai, da faifan rubutu.

Sarrafa barci da gajiya tare da epidermolysis bullosa

Koyi yadda epidermolysis bullosa (EB) ke shafar barci da gajiya, da kuma yadda za ku iya sarrafa shi tare da nasiha ga mutanen da ke da EB.
Ya koyi
Likitan hakori sanye da shudin riga yayi magana da mara lafiyarta.

Kulawar EB: ido, hakori, tiyata da tallafin ciwon daji

Bayyani na samun ƙwararrun epidermolysis bullosa (EB) kiwon lafiya don kula da ido, likitan haƙori, tiyata, da sarrafa kansa.
Ya koyi
Logo na DEBRA UK. Tambarin ya ƙunshi gumakan malam buɗe ido shuɗi da sunan ƙungiyar. Ƙarƙashin, alamar rubutun yana karanta "The Butterfly Skin Charity.
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Bayanin Sirri

Wannan shafin yanar gizon yana amfani da kukis domin mu iya ba ku damar kwarewa mafi kyau. Ana adana bayanin kuki a cikin burauzarka kuma yana aiki da ayyuka kamar gane da ku idan kun dawo zuwa shafin yanar gizon mu da kuma taimaka wa tawagar mu fahimci wane ɓangaren shafin yanar gizon da kuka samu mafi ban sha'awa da amfani.