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Epidermolysis bullosa tallafin ilimi

Mun zo nan don ba da jagora kan kewaya tsarin ilimi a Ingila, Scotland, da Wales don yara masu fama da epidermolysis bullosa (EB).

Yara biyu masu EB suna murmushi da nuna farin ciki yayin da suke zaune a kasa a kan wani duhu. Dukansu suna da alamun jajayen ganuwa a hannayensu da ƙafafu.

Kewaya makaranta tare da epidermolysis bullosa (EB)

A kowane mataki na ilimi, akwai tallafi da ake samu daga Ƙungiyar Tallafin Al'umma ta DEBRA na EB da sauran ƙungiyoyi don tabbatar da yaranku sun sami kulawar da ta dace don buƙatun EB ɗin su.
Karin bayani
A cikin yanayi mai ban sha'awa na waje, mutane biyu suna tsaye tare da juna: daya a cikin tabarau da rigar kai, ɗayan a cikin jaket.

Taimakawa sauyawa daga EB yaro zuwa babba tare da EB

Taimako na aiki da shawarwari wanda ya shafi kiwon lafiya, ilimi, da fa'idodi don tallafawa sauyawa daga yaro zuwa babba tare da EB.
Karin bayani