Tsallake zuwa content

Kwararren EB Kiwon lafiya

Wani mutum-mutumi na Mary Seacole yana tsaye da alfahari a gaban wani babban madauwari na tagulla, wanda aka saita a cikin wani yanki mai shimfidar wuri mai cike da kore.

Muna aiki tare da haɗin gwiwa tare da NHS don isar da ingantaccen sabis na kiwon lafiya na EB wanda ke da mahimmanci ga mutanen da ke zaune tare da EB. Akwai cibiyoyin EB guda huɗu da aka keɓance a kusa da Burtaniya waɗanda ke ba da ƙwararrun EB kiwon lafiya da tallafi, da sauran wuraren asibiti da asibitoci na yau da kullun waɗanda ke nufin samar da sabis na EB ga mutane a duk inda suke. 

Ƙungiyoyin da suka ƙunshi DEBRA EB Masu Gudanar da Tallafin Jama'a, masu ba da shawara, EB jagororin, ma'aikatan jinya da sauran ƙwararrun ƙwararrun ƙwararrun kiwon lafiya suna ba da tsarin kulawa da yawa don kulawa tare da manyan matakan ƙwarewa.

Kwararrun EB

An jera bayanan tuntuɓar cibiyoyin EB guda huɗu a cikin Burtaniya a ƙasa (an nuna alamar alama*), da kuma sauran asibitocin da kwararrun EB suke. Za mu ƙara ƙarin zuwa wannan jerin don haka idan ba a jera asibitin ku ba amma kuna son a taimaka tuntuɓar ƙungiyar kiwon lafiya, da fatan za a tuntuɓi. mu tawagar. Hakanan zamu iya taimakawa tare da masu ba da shawara ko fahimtar ƙungiyar kiwon lafiya ta fi dacewa da yanayin ku.

Gubar asibiti

Malobi Ogboli

email: malobi.ogboli@bch.nhs.uk

Tawagar EB

Telephone: 0121 3338757/8224 (ambaci cewa yaron yana da EB)

Emel: eb.team@nhs.net

Allon juyawa: 0121 333 9999

website: https://bwc.nhs.uk/epidermolysis-bullosa

Tawagar EB

Sharon Fisher, ma'aikaciyar jinya ta likitan yara ta EB:

Telephone: 07930 854944,

Emel: sharon.fisher@ggc.scot.nhs.uk

Kirsty Walker, ma'aikaciyar jinya a fannin fata:

Telephone: 07815 029269

Emel: Kirsty.walker@ggc.scot.nhs.uk

Dr Catherine Jury, mai ba da shawara kan ilimin fata:

Telephone: 0141 451 6596

Switchboard: 0141 201 0000

website: nhsggc.org.uk

Tawagar EB

Dr Catherine Jury, mai ba da shawara kan ilimin fata:

Telephone: 0141 4516596

Susan Herron, mataimakiyar Tallafin Kasuwancin EB:

Telephone: 0141 201 6447

Emel: susan.herron@ggc.scot.nhs.uk

Switchboard (A&E): 0141 414 6528

website: https://bwc.nhs.uk/epidermolysis-bullosa

Clinical lead

Dokta Anna Martinez

Tawagar EB

Telephone: 0207 829 7808

Emel: eb.nurses@gosh.nhs.uk

Switchboard: 0207 405 9200

website: https://www.gosh.nhs.uk/conditions-and-treatments/conditions-we-treat/epidermolysis-bullosa/

EB consultants

  • Professor Jemima Mellerio
  • Farfesa John McGrath
  • Dr Danielle Greenblatt

Clinics are held at the Rare Diseases Centre, 1st floor, South Wing, St Thomas’ Hospital, Westminster Bridge Road, London SE1 7EH.

EB administrator

Telephone: 020 7188 0843

Rare Diseases Centre reception

Telephone: 020 7188 7188 tsawo 55070

Emel: gst-tr.dermatologyreferralsEB@nhs.net

Yanar Gizo: https://www.guysandstthomas.nhs.uk/our-services/adult-epidermolysis-bullosa-eb

Tawagar EB

Telephone: 0121 424 5232

Emel: ebteam@uhb.nhs.uk

Switchboard: 0121 424 2000

website: https://www.uhb.nhs.uk/services/dermatology/dermatology-services.htm