Abubuwan albarkatu don ƙwararrun kiwon lafiya
Wannan shafin ya ƙunshi albarkatu don ƙwararrun ƙwararrun kiwon lafiya (HCPs) masu kula da kula da masu haƙuri na EB.
Da fatan a ziyarci mu Taimakon EB da albarkatu don abubuwan da suka dace da ƙwararrun marasa aikin likita.
Publications
Ban da Farashin DEBRA International Ka'idojin Gidajen Harkokin Clinical, akwai ƙarin ƙarin albarkatu da ke akwai ga ƙwararrun masu kula da kula da marasa lafiya na EB.
- Hanyoyin tiyata
- Shawarwari na Ratsa Hannu da Motsa Jiki don Yara masu fama da epidermolysis bullosa
- © Babban Asibitin Yara na Birmingham NHS Trust, ana samun su anan ta kyakkyawar izinin ƙungiyar Ma'aikatan Asibitin Yara na Birmingham
- Birmingham Women & Children NHS Foundation Trust ta kuma samar da iri-iri leaflets da bidiyo na ilimi ga kwararru.
- The '2023 EB Nazarin Hankali na Haƙuri: Fahimtar Ingantacciyar Rayuwa'' taƙaitaccen bayanin yana nuna hanyoyin da aka ɗauka don kammala wannan binciken, sakamako, da mahimmin ƙarshe.
Yadda ake yin magana zuwa Ƙungiyar Tallafin Al'umma ta EB
Mu Taimakon Al'umma na EB yana aiki kafada da kafada da kwararrun likitoci da kiwon lafiya. Don ƙarin koyo game da wannan tsari na mikawa, da fatan za a karanta manufofin neman.
Shirin EB-CLINET
EB-CLINET dandamali ne na kasa da kasa wanda ke nufin tabbatar da mafi kyawun kulawar haƙuri ga mutanen da ke da EB. Wannan yunƙurin yana ba da damar haɓakawa ta hanyar haɗa ƙwararrun kiwon lafiya na EB, rabawa da riƙe gwaninta da haɓaka haɗin gwiwa da haɓakawa.
Lafiyar Hankali da Cutar da ba kasafai ba
Likitoci 4 Rare Cututtuka sun ƙaddamar da wani sabon kwas na kan layi, 'Lafiyar Hankali da Rare Cuta', Muhimmancin ɓarna mai wuyar warwarewa a cikin kulawar cututtukan da ba kasafai ba.
Kundin tsarin ya ƙunshi darussa masu ma'amala guda 8.
Farashin EB CPD
Yana da mahimmanci cewa duk wanda ke zaune tare da kowane nau'i na EB ya sami ganewar asali daga HCP. Tare da wannan za su iya samun dama ga goyan bayan kiwon lafiya na EB ta hanyar NHS. Hakanan za su iya shiga DEBRA kyauta kuma su sami cikakken sabis na tallafi da fa'idodin membobinmu.
Don tallafawa HCPs a cikin ganewa da bincikar EB, mun haɓaka sabon tsarin CPD. An ƙirƙira tare da haɗin gwiwar ƙwararrun kiwon lafiya na EB da GPs, ana iya samun damar CPD kyauta akan dandamalin Likitan NB.
RA'AYI: Ba za a iya ɗaukar DEBRA alhakin abubuwan da ke cikin shafukan waje ba.
Kwanan sake dubawa na ƙarshe: Agusta 2025
Kwanan sake dubawa na gaba: Maris 2026