A cikin wannan shafin za ku sami hanyoyin haɗi zuwa wallafe-wallafe da albarkatu don tallafawa ƙwararrun ma'aikatan kiwon lafiya wajen kula da marasa lafiya na EB. Daga CPDs waɗanda ke taimakawa wajen gano alamun cutar, zuwa jagororin aiki mafi kyau na asibiti da tallafin lafiyar kwakwalwa.  

Da fatan za a ziyarci tallafinmu na EB da albarkatunmu don abubuwan da suka dace da waɗanda ba ƙwararrun likitoci ba.

Publications

Baya ga Jagororin Ayyukan Asibiti na DEBRA International , akwai wasu ƙarin albarkatu da ake da su ga ƙwararru masu kula da kula da marasa lafiya na EB.

• Hanyoyin tiyata
• Shawarwari na Ratsa Hannu da Motsa Jiki don Yara masu fama da epidermolysis bullosa
  • © Babban Asibitin Yara na Birmingham NHS Trust, ana samun su anan ta kyakkyawar izinin ƙungiyar Ma'aikatan Asibitin Yara na Birmingham
• Birmingham Women & Children NHS Foundation Trust ta kuma samar da iri-iri leaflets da bidiyo na ilimi ga kwararru.
• The '2023 EB Nazarin Hankali na Haƙuri: Fahimtar Ingantacciyar Rayuwa'' taƙaitaccen bayanin yana nuna hanyoyin da aka ɗauka don kammala wannan binciken, sakamako, da mahimmin ƙarshe.

 

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Yadda ake yin magana zuwa Ƙungiyar Tallafin Al'umma ta EB

Ƙungiyar Tallafin Al'umma ta EB tana aiki kafada da kafada da ƙwararrun likitoci da na lafiya. Don ƙarin koyo game da wannan tsarin tura mutane, da fatan za a karanta manufar tura mutane zuwa ga jama'a.

 

Karanta manufofin mu na neman

Shirin EB-CLINET

EB-CLINET dandamali ne na kasa da kasa wanda ke nufin tabbatar da mafi kyawun kulawar haƙuri ga mutanen da ke da EB. Wannan yunƙurin yana ba da damar haɓakawa ta hanyar haɗa ƙwararrun kiwon lafiya na EB, rabawa da riƙe gwaninta da haɓaka haɗin gwiwa da haɓakawa.

 

Ya koyi

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Lafiyar Hankali da Cutar da ba kasafai ba

Ƙungiyar Likitoci 4 Masu Rare Diseases ta ƙaddamar da wani sabon kwas na kan layi, 'Lafiyar Hankali da Cututtuka Masu Rare', wani muhimmin aikin warware matsalar da ta ɓace a cikin kulawar cututtuka masu rare.

Kundin tsarin ya ƙunshi darussa masu ma'amala guda 8.

 

Binciki Sakamakon

Modules na EB CPD

Yana da mahimmanci duk wanda ke zaune da kowace irin cuta ta EB ya sami ganewar asali daga ƙwararren ma'aikacin kiwon lafiya. Da wannan za su iya samun tallafin kiwon lafiya na EB ta hanyar NHS.

Domin tallafawa kwararrun ma'aikatan kiwon lafiya wajen gane alamun cutar EB, mun ƙirƙiro sabbin na'urorin EB CPD.

 

TAMBAYOYI

Events

EB 2026 Majalisar Dinkin Duniya

Daga Janairu 20 zuwa 22, São Paulo (Brazil) za ta karbi bakuncin babban taron duniya da aka keɓe ga EB, tare da haɗa masana, marasa lafiya da masu bincike daga ƙasashe sama da 50.

SANARWA : Ba za a iya ɗaukar DEBRA alhakin abubuwan da ke cikin shafukan yanar gizo na waje ba.

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Kwanan sake dubawa na ƙarshe: Agusta 2025
Kwanan sake dubawa na gaba: Maris 2026