Wannan shafin yanar gizon yana amfani da kukis domin mu iya ba ku damar kwarewa mafi kyau. Ana adana bayanin kuki a cikin burauzarka kuma yana aiki da ayyuka kamar gane da ku idan kun dawo zuwa shafin yanar gizon mu da kuma taimaka wa tawagar mu fahimci wane ɓangaren shafin yanar gizon da kuka samu mafi ban sha'awa da amfani.
Abubuwan albarkatu don ƙwararrun kiwon lafiya
Wannan shafin ya ƙunshi albarkatu don ƙwararrun ƙwararrun kiwon lafiya da ke kula da kula da masu haƙuri na EB. Da fatan za a ziyarci mu Taimakon EB da albarkatu don abubuwan da suka dace da ƙwararrun marasa aikin likita.
Publications
Baya ga DEBRA International's Ka'idojin Gidajen Harkokin Clinical, akwai ƙarin ƙarin albarkatu da ke akwai ga ƙwararrun masu kula da kula da marasa lafiya na EB.
- Hanyoyin tiyata
- Shawarwari na Ratsa Hannu da Motsa Jiki don Yara masu fama da epidermolysis bullosa
- © Babban Asibitin Yara na Birmingham NHS Trust, ana samun su anan ta kyakkyawar izinin ƙungiyar Ma'aikatan Asibitin Yara na Birmingham
- Birmingham Women & Children NHS Foundation Trust ta kuma samar da iri-iri leaflets da bidiyo na ilimi ga kwararru.
Yadda ake yin magana zuwa Ƙungiyar Tallafin Al'umma ta EB
Mu Taimakon Al'umma na EB yana aiki kafada da kafada da kwararrun likitoci da kiwon lafiya. Don ƙarin koyo game da wannan tsari na mikawa, da fatan za a karanta manufofin neman.
Da fatan a duba manufofin mu don sabon bayanin.
EB-CLINET
EB-CLINET wani yunƙuri ne don inganta kula da lafiya ga mutanen da ke da EB ta hanyar ƙarfafa haɗin gwiwa tsakanin ƙwararrun ma'aikatan kiwon lafiya da ke aiki tare da EB.
Lafiyar Hankali da Cutar da ba kasafai ba
Likitoci 4 Rare Cututtuka sun kaddamar da wani sabon kwas na kan layi, 'Lafiyar Hankali da Rare Cuta', mai kunshe da darussa 8 masu ma'amala.
RA'AYI: Ba za a iya ɗaukar DEBRA alhakin abubuwan da ke cikin shafukan waje ba.