Gudanar da haƙuri na EB don ƙwararrun kiwon lafiya
Mutanen da ke zaune tare da kowane nau'in EB suna da fata mai rauni sosai wacce za ta iya fashewa ko yage tare da ƙwanƙwasa kaɗan ko gogayya. Wasu majinyatan EB na iya samun kumburi mai zafi a hannayensu da ƙafafu kawai, yayin da wasu kuma na iya samun kumbura a kowane sashe na jikinsu ciki har da idanunsu, da cikin bakinsu da makogwaro.
Yana da mahimmanci ku tambayi majiyyata, danginsu, ko masu kula da su don neman shawara game da yanayin su kasancewar su ne ƙwararru. Bayanan kula da marasa lafiyar EB da ke ƙasa baya maye gurbin shawara daga ƙwararren ƙwararren kiwon lafiya.
MUHIMMI: Da fatan za a tuntuɓi ƙungiyar masu ba da lafiya ta EB na majiyyaci kafin yin duk wata hanya ta cin zarafi.
Gudanar da marasa lafiya na EB
| Guji / taka tsantsan | Madadin/nasihu |
| Matsi, juzu'i, da ƙarfi | Yi amfani da dabaru kamar 'ɗagawa da wuri'. |
| Yada blisters | Fashe blisters tare da bakararre allura, bar hular blister a wuri kuma a rufe da rigar da ba ta dace ba. |
| Tufafin m, kaset & ECG lantarki | Idan an buƙata ta likitanci, cire riguna tare da abin cire kayan shafa na likitanci na siliki ko 50% na ruwa paraffin, 50% farar maganin shafawa mai laushi. Cire a hankali tare da dabarar birgima, ba ta ɗaga sutura ba. |
| Yawon shakatawa | Matse gaɓoɓin hannu da ƙarfi, da nisantar ƙarfi; idan ya cancanta, yi amfani da padding. |
| hawan jini cuffs | Sanya a kan tufafi ko bandeji. |
| Thermometers | Yi amfani da ma'aunin zafi da sanyio. |
| Safofin hannu na tiyata | Lubrite da yatsa idan ya cancanta. |
| Cire tufafi | Yi amfani da taka tsantsan; idan makale, sai a jika da ruwan dumi. |
| Mattress | Yi amfani da katifa mai kawar da matsi mara canzawa. |
| Tsotsar iska | Idan ya cancanta, yi amfani da catheter mai laushi mai laushi. Idan ana buƙatar tsotson Yankeur a cikin gaggawa, yi amfani da man shafawa zuwa tip kuma babu tsotsawa yayin sakawa. Sanya catheter tsotsa a kan hakori don kauce wa cire murfin baki. |
| Bude idanu | Kada a tilasta budewa; yi amfani da mai mai, idan ya cancanta. |
| Hauwa | Bincika idan majiyyaci yana shan abinci ko magani da baki. Magungunan ruwa da abinci mai laushi ko abinci mai tsafta na iya dacewa. Abin sha mai sanyi ko dumi zai fi dacewa da abin sha mai zafi. |
Kamar yadda buɗaɗɗen raunuka ko ɗanyen fata na iya kamuwa da cuta sannan kuma suna buƙatar magani na gaggawa don hana ƙarin ciwo da lalacewa, yana da mahimmanci a yi taka tsantsan wajen hana kamuwa da cuta ga mutanen da ke da EB.
Domin ƙarin jagora kan kamuwa da cuta, kamar alamun kamuwa da cuta da abin da za a yi idan kun ga alamun kamuwa da cuta, da fatan za ku ziyarci shafinmu na 'Game da EB'.
Don ƙarin bayani game da kula da fata da rauni na EB, da fatan za a sauke Jagorar Aikin Asibiti ta EB.
EB Clinical Practice Guidelines (CPGs) don ƙwararrun kiwon lafiya
CPGs saitin shawarwari ne don ingantacciyar kulawar asibiti bisa shaidar da aka samu daga kimiyyar likita da kuma ƙwararrun ra'ayin likita. An tsara su don taimakawa masu sana'a na kiwon lafiya su fahimci yadda ake kula da marasa lafiya tare da EB.
DEBRA International, babbar hukumar da ke da ƙungiyoyin tallafi na DEBRA/EB sama da 50 a duk duniya, ciki har da DEBRA UK, ta samar da jagorori da dama, waɗanda yawancinsu DEBRA UK ta ba da tallafi (wanda aka nuna ta da alamar tauraro*). Don gano yadda aka ƙirƙiri waɗannan CPGs, da fatan za a sauke takardar bayanai ta EB CPG.
CPGs masu kaifin haƙuri
An ƙirƙiri EB CPGs musamman don ƙwararrun ma'aikatan kiwon lafiya waɗanda ke kula da marasa lafiya da ke fama da EB; duk da haka, akwai kuma ɗakin karatu na nau'ikan da aka tsara wa marasa lafiya don amfani da su ga mutanen da ke zaune tare da EB, 'yan uwansu, da masu kula da su. Ana iya samun waɗannan a gidan yanar gizon DEBRA International.
Idan kai ƙwararre ne a fannin kiwon lafiya wanda ke da gogewa a kula da marasa lafiya da ke fama da cutar EB kuma kana son shiga cikin haɓaka CPGs na EB nan gaba, da fatan za a tuntuɓe mu.
Shafin da aka buga: Oktoba 2024
Kwanan sake dubawa na ƙarshe: Maris 2025
Kwanan sake dubawa na gaba: Maris 2026