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Ma'aikatan kiwon lafiya

A matsayinka na ƙwararren kiwon lafiya mai yiwuwa ba ka taɓa jinyar mara lafiya da shi ba epidermolysis bullosa (EB) kuma yanayin zai iya zama sabo gare ku gaba ɗaya saboda ƙarancinsa. Koyaya, albarkatu da bayanai suna samuwa don tallafa muku.

Nemo ƙarin game da sabis na kiwon lafiya na EB na NHS, da yadda ake tuntuɓar su; EB jagororin aikin likita; albarkatun EB da horo; da kuma rawar da DEBRA ta EB Community Support Team ke takawa wajen tallafawa ƙwararrun kiwon lafiya.  

Wani mutum-mutumi na Mary Seacole yana tsaye da alfahari a gaban wani babban madauwari na tagulla, wanda aka saita a cikin wani yanki mai shimfidar wuri mai cike da kore.

NHS Specialist EB kiwon lafiya

Muna aiki tare da haɗin gwiwa tare da NHS don isar da ingantaccen sabis na kiwon lafiya na EB wanda ke da mahimmanci ga mutanen da ke zaune tare da EB.
Ya koyi
Mutumin da aka ɗaure ƙafafu yana kwance akan tebur ɗin likita, tare da safofin hannu shuɗi da zane a kusa.

Jagororin Ayyuka na Clinical na EB

Nemo saitin shawarwari don kulawar asibiti na EB bisa ga shaidar da aka samu daga kimiyyar likita da ra'ayin ƙwararru.
Karin bayani
Likita a cikin rigar dakin gwaje-gwaje yana riƙe da stethoscope, yana tsaye a cikin layin asibiti mai haske tare da ma'aikatan lafiya da marasa lafiya a bango.

Abubuwan albarkatu don ƙwararrun kiwon lafiya

Nemo albarkatu don ƙwararrun masu kula da kulawa da kula da marasa lafiya na EB, gami da wallafe-wallafe da damar horo.
Ya koyi
Masu sauraro suna sauraron mai magana a gaban allon tsinkaya yayin wani taron.

EB horo ga kwararrun kiwon lafiya

DEBRA tana tallafawa abubuwa da yawa don ƙwararrun kiwon lafiya don haɓaka ilimin su da ƙwarewar su a cikin EB.
Nemo wani taron
DEBRA Jakadiya Fazeel Irfan yana da guntun gashi da glass, sanye da riga kala-kala, yana zaune akan kujera mai shayi kusa da taga wanda aka rufe a tsaye yana kallon kasa yana dan murmushi.

Gudanar da marasa lafiya na EB

Nemo mahimman bayanai da shawarwari don sarrafa marasa lafiya da ke zaune tare da EB.
Ya koyi

Kun san…?

Idan kai kwararre ne na kiwon lafiya (ciki har da masu kula da biyan kuɗi) ƙware a EB ko aiki tare da marasa lafiyar EB, za ka iya zama memba na DEBRA UK. Memba yana da kyauta kuma yana ba ku damar samun tallafi mai amfani, damar shiga, da abubuwan da suka faru don haɗawa da wasu a cikin al'ummar EB.
Kasance memba na DEBRA
Logo na DEBRA UK. Tambarin ya ƙunshi gumakan malam buɗe ido shuɗi da sunan ƙungiyar. Ƙarƙashin, alamar rubutun yana karanta "The Butterfly Skin Charity.
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Bayanin Sirri

Wannan shafin yanar gizon yana amfani da kukis domin mu iya ba ku damar kwarewa mafi kyau. Ana adana bayanin kuki a cikin burauzarka kuma yana aiki da ayyuka kamar gane da ku idan kun dawo zuwa shafin yanar gizon mu da kuma taimaka wa tawagar mu fahimci wane ɓangaren shafin yanar gizon da kuka samu mafi ban sha'awa da amfani.