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Game da EB & DEBRA UK

Ƙara koyo game da epidermolysis bullosa (EB), wanda kuma aka sani da fatar malam buɗe ido. Wani yanayi mai raɗaɗi na kwayoyin halitta na fata wanda ke sa fata ta zama mai rauni sosai da yage ko kumbura a ɗan taɓawa.

Za ku kuma sami a nan bayani game da DEBRA UK da yadda muke tallafawa, ƙarfafawa, da bayar da shawarwari ga waɗanda EB ta shafa.

Fazeel yana rayuwa tare da recessive dystrophic epidermolysis bullosa. Hannunsa suna rufe da raunuka a bude.

Epidermolysis bullosa (EB): bayyanar cututtuka, magani, da kulawa

Ya koyi
Wata mata mai dogon gashi da smartwatch tana zaune a jikin bangon dutse, sanye da koren riga da lemukan lemu, sai gajimare a bayanta.

Epidermolysis bullosa simplex (EBS)

Ya koyi
Mutumin da ke da gajeren gashi mai duhu da tabarau, sanye da rigar beige, yana zaune a cikin gida tare da tsaka tsaki.

Dystrophic epidermolysis bullosa (DEB)

Ya koyi
Yarinya sanye da jajayen riga, tana rayuwa cikin farin ciki duk da junctional epidermolysis bullosa, ta kai ga kumfa a waje da wani shingen shinge da yanayin yanayin duhu.

Junctional epidermolysis bullosa (JEB)

Ya koyi
Madaidaicin DNA tare da kashi ɗaya ya rabu da bangon orange, a alamance yana nuna raunin da aka gani a cikin Kindler epidermolysis bullosa.

Kindler epidermolysis bullosa (KEB)

Ya koyi
Kusa da balloon mai "debra, agajin fata na malam buɗe ido, yana taimakawa dakatar da zafin EB" da aka buga akan shi.

Game da DEBRA UK - Babban ƙungiyar agaji ta EB

Ya koyi
Jadawalin tarihin tarihin DEBRA na Burtaniya daga 1980 zuwa 2000, yana nuna mahimman matakai kamar bincike na asibiti na farko, ma'aikatan da aka biya, buɗe kantin sayar da sadaka, tallafin gwamnati, ganewar haihuwa na tushen DNA, da kafa sabis na tallafi na haƙuri.

DEBRA tarihin kowane zamani

Ya koyi
Mata biyu sun tsaya suna magana a wani taron da ke kusa da banner game da gel. Ɗayan, wakiltar sabis na membobin DEBRA UK, yana riƙe da takardu, yayin da ɗayan yana sanye da riga mai shuɗi mai alamar suna. Masu halarta suna haɗuwa a bango.

DEBRA UK sabis

Ya koyi
Wata mata rike da yaro da bandejin magani tana sauraren mutum yana nuna allon waya.

Taimakon Al'umma na EB

Ya koyi
Wani mutum sanye da koriyar riga yayi murmushi ya zauna kusa da wata yarinya daure da hannu.

Kasance memba na DEBRA

Mu ne ƙungiyar agaji ta ƙasa don mutanen da ke zaune tare da epidermolysis bullosa (EB) a cikin Burtaniya. Mun kuduri aniyar tallafawa EB...
Ya koyi