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Taimakon EB da albarkatu

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Wani mutum sanye da koriyar riga yayi murmushi ya zauna kusa da wata yarinya daure da hannu.

Kasance memba na DEBRA

Mu ne ƙungiyar agaji ta ƙasa don mutanen da ke zaune tare da epidermolysis bullosa (EB) a cikin Burtaniya. Mun kuduri aniyar tallafawa EB...
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Kusa da alamar gaggawa ta haskaka a ƙofar ginin asibiti mai tagogi da ke nuna sararin samaniyar maraice.

Bayanin gaggawa ga marasa lafiya na EB

A cikin gaggawar likita koyaushe kira 999 ko je wurin A&E mafi kusa. Gaggawa na likita shine lokacin da wani ya kasance da gaske ...
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Wata mata rike da yaro da bandejin magani tana sauraren mutum yana nuna allon waya.

Taimakon Al'umma na EB

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Mata biyu sun tsaya suna magana a wani taron da ke kusa da banner game da gel. Ɗayan, wakiltar sabis na membobin DEBRA UK, yana riƙe da takardu, yayin da ɗayan yana sanye da riga mai shuɗi mai alamar suna. Masu halarta suna haɗuwa a bango.

DEBRA UK sabis

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Wata karamar yarinya tana wasa cikin farin ciki a tsakanin manyan kumfa sabulu yayin da mutane ke kewaye da ita yayin taron membobin DEBRA UK.

Taimakon tsara & abubuwan da suka faru

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Gidan biki na katako yana zaune a tsakanin dogayen bishiyoyi a cikin wani yanki mai dazuka, tare da hanyar tsakuwa da ke kaiwa gare shi da kuma shingen katako da ake iya gani a baya.

DEBRA gidajen biki

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Fazeel yana rayuwa tare da recessive dystrophic epidermolysis bullosa. Hannunsa suna rufe da raunuka a bude.

Epidermolysis bullosa (EB): bayyanar cututtuka, magani, da kulawa

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Kwararren likita yana yanke bandeji a hankali daga ƙafar mutum akan saman da aka lulluɓe shuɗi.

Jiyya & Gudanarwa

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