Wannan shafin yanar gizon yana amfani da kukis domin mu iya ba ku damar kwarewa mafi kyau. Ana adana bayanin kuki a cikin burauzarka kuma yana aiki da ayyuka kamar gane da ku idan kun dawo zuwa shafin yanar gizon mu da kuma taimaka wa tawagar mu fahimci wane ɓangaren shafin yanar gizon da kuka samu mafi ban sha'awa da amfani.
Gidan yanar gizo na Bincike da Lafiya
Jerin gidan yanar gizon mu na Bincike da Lafiya ana gudanar da shi ta DEBRA Daraktan Bincike na Burtaniya Dr Sagair Hussain kuma yana ba da baƙi iri-iri da ke magana kai tsaye game da ƙwarewar su a cikin bincike da kiwon lafiya na EB. Waɗannan zaman za su zama babban zarafi don koyo game da batutuwa daban-daban da suka shafi EB, kuma masana su amsa tambayoyinku. Suna buɗe wa kowa kuma masu magana da mu suna nufin yin amfani da yare a sarari amma za su ba da damar fahimtar bincike na EB da kiwon lafiya a zurfin zurfi.
Yi rijista don shafukan yanar gizo masu zuwa kuma duba rikodin daga abubuwan da suka faru a baya a ƙasa.
Webinars suna zuwa
Haɗa Dr David Brumbaugh, MD MSCS FAAP, Mataimakin Farfesa a Makarantar Magunguna ta Jami'ar Colorado, da Babban Jami'in Lafiya a Asibitin Yara na Colorado Amurka.
Ku zo ku saurare ku yi tambayoyinku game da…
- Matsalolin narkewar abinci masu alaƙa da EB
- Sakamakon bayyanar cututtuka na narkewa a kan yara da manya da ke zaune tare da EB
- Zaɓuɓɓukan jiyya don abubuwan da EB ke haifarwa tare da narkewa
Ƙarin bayani game da mai magana baƙo na wannan taron:
Dr. Yankunan da ya fi mayar da hankali a asibiti sun hada da ilimin gastroenterology na yara da kuma matsalolin narkewa a cikin yara / manya tare da Epidermolysis Bullosa da cutar neuromuscular.
Gidan yanar gizon mu na Janairu yana wani lokaci daban don ba da damar bambancin lokaci tsakanin Burtaniya da Amurka. Bayan haka, jerin webinar na 2025 za su ci gaba a ranar Laraba ta farko na wata da karfe 1 na rana.
Haɗa Dr Roland Zauner, Shirin Jagoran Binciken Magunguna & Maimaitawa a EB Haus, Salzburg, Austria.
Ku zo ku saurare ku yi tambayoyinku game da…
- Magungunan da aka yi niyya don EB
- Binciken magunguna don gano sababbin jiyya na EB
- Sabbin hanyoyin fasaha na gano magunguna
Ƙarin bayani game da mai magana baƙo na wannan taron:
Dokta Zauner ƙwararren ƙwararren ƙwararren ƙwayoyin halitta ne wanda ke da ilimin injiniya da haɓaka software. Ya kasance yana da hannu a cikin bincike na EB fiye da shekaru tara a gidan EB a Salzburg, Austria, tare da sha'awa ta musamman ga ilmin kwayoyin cutar tumo da warkar da raunuka. Yana da hannu a cikin samar da novel kadan invasive ciwon tumor ganewar asali da kuma jagorantar wani preclinical shirin gano miyagun ƙwayoyi mayar da hankali a kan mayar da kwayoyi don maganin ciwon daji.
Haɗa Dr Inês Sequeira, Babban Malami a Jami'ar Queen Mary London, UK.
Ku zo ku saurare ku yi tambayoyinku game da…
- Waraka da tabo a baki
- Gano sabbin hanyoyin taimakawa bakunan EB da warkar da fata
- Fasahar fasahar multiomics ta zamani a cikin EB
Ƙarin bayani game da mai magana baƙo na wannan taron:
Dr Inês Sequeira Jagoran Rukuni ne kuma Babban Malami a Cibiyar Barts don Ciwon daji na Squamous - Cibiyar Dentistry, QMUL, UK. Ta shafe shekaru 20 tana karantar ilimin kwayoyin halitta da kuma ciwon daji. Binciken nata ya mayar da hankali ne kan kansar baki da kuma yadda raunuka ke warkewa daban-daban a cikin baki.
Webinars na baya
Kasance tare da Dr Emma Chambers, mai bincike kuma malami a Jami'ar Queen Mary's, London.
Ku kalli bidiyon don jin labarin…
- 'Rundunar sojojinmu' - ƙwayoyin tsarin rigakafi da sunadarai
- Yadda ƙwayoyin rigakafi da sunadarai ke haifar da kumburi a cikin fata
- Ta yaya magungunan rigakafin kumburi zasu iya aiki a cikin EB
Ƙarin bayani game da mai magana baƙo na wannan taron:
Dr Chambers kwararre ne na rigakafi da ke Cibiyar Blizard a Jami'ar Sarauniya Mary ta Landan. An ba ta lambar yabo Oliver Thomas EB Fellowship nazarin ko magungunan da ake amfani da su na anti-inflammatory na iya rage EB blisters da ke haifar da sunadaran tsarin rigakafi da kwayoyin halitta.
Haɗa Dr Su Lwin, masanin ilimin fata kuma malami mai daraja a St John's Institute of Dermatology da King's College London.
Kalli rikodin don sauraron tambayoyi game da…
- Ilimin kimiyyar da ke bayan jiyya na kwayoyin halitta don EB
- Yadda hanyoyin kwantar da ƙwayoyin ƙwayoyin cuta zasu iya taimakawa alamun EB
- Yadda waɗannan hanyoyin kwantar da hankali ke aiki a aikace
Ƙarin bayani game da mai magana baƙo na wannan taron:
Dr Lwin yana da gogewa fiye da shekaru 10 a cikin binciken EB, musamman a fannin ilimin halittar jini da kuma hanyoyin kwantar da hankali. Ta kuma sadaukar da ita don haɓaka sake fasalin ƙwayoyi don kowane nau'in EB.
Haɗa Dr Rob Hynds, Babban Jami'in Bincike a Kwalejin Jami'ar London.
Kalli rikodin don sauraron tambayoyi game da…
- Yadda nau'ikan EB daban-daban na iya shafar numfashi da huhu.
- Magungunan kwayar halitta da kwayoyin halitta wanda Dr Hynds ke aiki akai, da kuma yadda za'a iya amfani dashi don taimakawa mutane masu EB.
- Sabbin magungunan ƙungiyar Dr Hynds suna aiki don taimakawa masu EB tare da numfashi.
Ƙarin bayani game da mai magana baƙo na wannan taron:
Rob ya horar da shi a matsayin masanin ilimin halitta a Jami'ar Durham, Jami'ar College London (UCL) da Cibiyar Francis Crick kafin kafa ƙungiyar bincike ta EpiCENTR a Cibiyar Zayed don Bincike kan Cutar Rare a Yara a UCL a cikin 2022. Ƙungiyar Rob tana aiki tare da likitocin fata da kuma masu binciken fata. Likitocin kunne, hanci da makogwaro a Babban Asibitin Titin Ormond don bincika nau'ikan EB da ke shafar tsarin numfashi, da haɓaka sabbin hanyoyin kwantar da hankali dangane da binciken ƙwayoyin cuta da ƙwayoyin cuta.
Kasance tare da Kathryn Moore, mai ba da shawara akan kwayoyin halitta a Sabis na Genetic na Yanki na Yorkshire da ke Leeds.
Kalli rikodin don sauraron tambayoyi game da…
- Hanyoyin gado na EB
- Zaɓuɓɓukan gwajin kwayoyin halitta na iyaye kafin yin ciki
- Gwajin kwayoyin halitta yayin daukar ciki
Ƙarin bayani game da mai magana baƙo na wannan taron:
Kathryn ta kasance mai ba da shawara ta kwayoyin halitta tsawon shekaru 6 da suka gabata tana aiki a kan gwajin ƙwayoyin cuta na farko, ciwon daji, cututtukan zuciya da na haihuwa. Tana da digiri na farko a fannin ilimin Halittar Jiki daga Jami'ar Leicester da Masters a Tsarin Halitta daga Jami'ar Sydney. Bayan ta yi karatu a Jami'ar Sydney ta shafe shekaru biyu tana aiki a New South Wales Health a Ostiraliya kafin ta koma Burtaniya, zuwa Sabis na Ganewa na Yankin Yorkshire da ke Leeds. Ta cimma rajistarta da makarantar kimiyya game da ilimin kiwon lafiya tunda ya dawo Burtaniya kuma kwamitin masu ba da shawara na shekaru biyu da suka gabata. A matsayin wani ɓangare na aikinta, Kathryn na fatan inganta wayar da kan jama'a game da zaɓuɓɓukan da ke akwai a cikin kwayoyin halitta ta yadda daidaikun mutane da iyalai su iya yanke shawara mai kyau game da kula da lafiyar danginsu.
lura: Binciken yanar gizo na bincike da Lafiya an tsara su daban da sauran abubuwan mu na kan layi kamar yadda za mu yi rikodin masu magana da gabatarwa. Don amincin ku na kan layi, ba za ku iya amfani da kyamarar ku ba ko yin magana kai tsaye tare da sauran masu halarta.