Wannan shafin yanar gizon yana amfani da kukis domin mu iya ba ku damar kwarewa mafi kyau. Ana adana bayanin kuki a cikin burauzarka kuma yana aiki da ayyuka kamar gane da ku idan kun dawo zuwa shafin yanar gizon mu da kuma taimaka wa tawagar mu fahimci wane ɓangaren shafin yanar gizon da kuka samu mafi ban sha'awa da amfani.
Tasirin binciken mu
"Abin da nake fata don binciken EB shine a sa abin da ya taɓa yiwuwa, mai yiwuwa. Ina son kyakkyawar makoma ga Isla; Ina son magani ya faru a rayuwarta.”
Andy da Isla, Membobin DEBRA
Rahoton tasirin binciken mu
Anan a DEBRA UK, burin Andy & Isla suma burin mu ne. Ta hanyar zazzage kwafin ku na Rahoton Tasirin Bincike na DEBRA UK 2021, zaku iya sanin tasirin tasirin. epidermolysis bullosa (EB) akan rayuwar dubban yara, maza da mata na Burtaniya yayin da masu binciken EB ke ƙoƙarin neman magani.
gano:
- Iyalin mutanen da wannan cuta ta fata ta shafa;
- Kyakkyawan ra'ayinmu game da makomar kyauta daga EB;
- ƙwararrun kiwon lafiya da sabis da ake samu ga majiyyatan EB da iyalai;
- Ƙaddamar da ingantaccen bincike a madadin marasa lafiya da iyalai na EB;
- Kuma more.
Yarda da kudade daga DEBRA UK:
Lokacin gabatarwa ko buga sakamakon, kuɗin daga DEBRA UK yakamata a yarda da ita ta amfani da tambarin mu da kalmomin:
'Kudade don – lambar kyauta An samu daga DEBRA UK.'
Babban mai binciken ya kamata ya aika pdf na duk takaddun da aka buga, ƙaddamar da rubuce-rubucen rubuce-rubuce da taƙaitaccen taro game da Aikin zuwa DEBRA UK a duk lokacin tallafin da kuma shekaru biyar bayan an ƙare tallafin. Za a jera wallafe-wallafe a ƙasa:
Bugawa da aka samo daga tallafin DEBRA UK
Za mu so mu ji daga wurin ku!
Muna son jin muryoyin iyalai da ke zaune tare da EB don taimaka mana yanke shawarar ayyukan bincike da za mu bayar.
Idan kuna son sanar da mu ra'ayoyinku game da bincikenmu ko kuma za ku yi farin cikin tuntuɓar ku don neman ra'ayin ku kan irin binciken da muke bayarwa, don Allah shiga.