Wannan shafin yanar gizon yana amfani da kukis domin mu iya ba ku damar kwarewa mafi kyau. Ana adana bayanin kuki a cikin burauzarka kuma yana aiki da ayyuka kamar gane da ku idan kun dawo zuwa shafin yanar gizon mu da kuma taimaka wa tawagar mu fahimci wane ɓangaren shafin yanar gizon da kuka samu mafi ban sha'awa da amfani.
Rayuwa tare da EB a Burtaniya
Wannan aikin zai fassara cikakkun bayanai daga GPs da Office for National Statistics (ONS) zuwa bayanan da za a iya amfani da su game da adadin mutanen da ke zaune tare da EB a Burtaniya, alamun su, da kuma jiyya da suke samu.
Dr Zoe Venables yana aiki a Jami'ar Gabashin Anglia, akan wannan aikin don ƙarin fahimtar yadda mutanen da ke zaune tare da EB ke shafar alamun su. Za a yi amfani da bayanan kiwon lafiya ta GPs da bayanai daga asibitoci da Ofishin Kididdiga na Gwamnati (ONS) don bayyana irin jiyya da mutanen da ke zaune tare da EB suke samu da menene sakamakonsu. A cikin wannan aikin, za a ƙara adadin mutanen da ke da nau'ikan EB da alamomi daban-daban kuma a kwatanta su. Wannan zai bai wa likitoci da masu bincike kyakkyawar fahimtar yadda ake rayuwa tare da EB da kuma taimaka musu wajen samar da ingantacciyar tallafi da magani.
Game da kudaden mu
| Jagoran Bincike | Dr Zoe Venables |
| Institution | Norfolk da Asibitin Jami'ar Norwich & Jami'ar Gabashin Anglia |
| Nau'in EB | Duk nau'ikan EB |
| Hanyar haƙuri | Babu |
| Adadin kuɗi | £48,381 |
| Tsawon aikin | 18 watanni |
| Fara kwanan wata | 01 Oktoba 2024 |
| DEBRA ID na ciki | GR000088 |
Bayanan aikin
Domin 2025.
Jagoran bincike: Dokta Zoe Venables Farfesa Mataimakin Farfesa ne na Clinical kuma Mashawarcin Likitan fata a Norfolk da Asibitin Jami'ar Norwich da Jami'ar Gabashin Anglia. Ita ce Clinical Clinical tana haifar da rajista na Cancer na Ilimin Kasa da Bincike.
Masu bincike: Ms Marta Kwiatkowska babbar mai nazarin bayanai ce da ke aiki tare da NHS Ingila da DEBRA UK don ƙarin fahimtar yadda mutanen da ke zaune tare da EB ke samun sabis na NHS. Ta karɓi MSc ɗinta daga Kwalejin Imperial ta London a cikin Nazarin Bayanan Lafiya.
A baya ta yi aiki a Kiwon Lafiyar Jama'a ta Ingila tana nazarin bayanan cutar kansar fata, don ƙungiyar likitocin fata ta Burtaniya da kuma masana'antar harhada magunguna.
"Wannan yana da mahimmanci don bincike da tsarawa don inganta ayyukan kiwon lafiya da haɓaka sabbin jiyya don EB."
- Dr Zoe Venables
Sunan bayar: Epidemiology na Epidermolysis Bullosa a Burtaniya
Epidermolysis Bullosa (EB) rukuni ne na cututtukan fata da ba kasafai ake gado ba wanda ke sa fata ta zama mai rauni kuma ta zama blisters. Yawancin lokaci ana gano shi a jarirai da yara ƙanana kuma a lokuta masu tsanani, yana iya haifar da mutuwa da wuri. An san kadan game da adadin mutanen da ke rayuwa tare da EB da kuma yadda ake bi da su a Burtaniya. Wannan aikin zai yi amfani da Datalink na Clinical Practice Research Datalink (CPRD) Aurum da Gold Databases don nazarin bayanai game da EB, sau nawa marasa lafiya tare da EB suna ganin Janar Kwararru (GPs), wane magani suke karɓa da kuma ko akwai bambance-bambance tsakanin nau'in EB. Za a yi amfani da bayanan Kididdigar Kididdigar Asibiti (HES) don nazarin shigar da asibiti da ziyarar da suka shafi EB. Bugu da ƙari, za a samo bayanai game da mutuwar marasa lafiya tare da EB daga Ofishin Kididdiga na Ƙasa (ONS). Wannan bayanin zai ba da damar lissafin kuɗin da Hukumar Kula da Lafiya ta Kasa (NHS) ta yi, wanda ke da mahimmanci don bincike da tsarawa don inganta ayyukan kiwon lafiya da haɓaka sababbin jiyya ga EB.
Sakamakon binciken zai kasance:
- inganta fahimtar mu game da yadda EB ke gama gari a Burtaniya.
- haskaka ƙimar mace-mace tsakanin nau'ikan nau'ikan EB daban-daban.
- kafa mene ne manyan cututtukan da ke yaduwa tsakanin marasa lafiya tare da EB.
- taimaka fahimtar hanyoyin haƙuri da yadda ake kula da marasa lafiya, da ƙididdige farashi ga NHS.
Domin 2025.