Tsallake zuwa content

Mu bincike

DEBRA UK ita ce babbar mai ba da kuɗaɗen bincike na epidermolysis bullosa (EB) a Burtaniya . Mun zuba jari sama da fam miliyan 24 kuma mun ɗauki alhakin, ta hanyar ba da kuɗaɗen bincike da aiki a ƙasashen duniya, don kafa yawancin abin da aka sani yanzu game da EB.

Infographic yana nuna ayyukan bincike na 161, masu bincike 127, wuraren bincike na 63 a cikin ƙasashe 16, guraben karatu na PhD 7, gwaje-gwajen asibiti 5, da kuɗi sama da £24.5 miliyan.

Muna da hangen nesa na duniya inda babu wanda ke fama da ciwon fata mai zafi na epidermolysis bullosa (EB). Tsarin bincikenmu yana mai da hankali kan abin da ke da mahimmanci ga mutanen da ke fama da EB. Burinmu shine nemo magunguna don rage tasirin EB na yau da kullun, da kuma magunguna don kawar da EB. Za mu ba da kuɗaɗen kimiyya mafi inganci a duk faɗin duniya wanda ke da yuwuwar isar da lafiya ga marasa lafiya na EB.

Hannun safofin hannu yana sanya faifan gilashi a ƙarƙashin na'urar hangen nesa.

Ayyukan binciken mu na EB

DEBRA UK ita ce mafi girman mai ba da kuɗi na Burtaniya na binciken EB. Muna ba da kyauta ga masu bincike masu ƙwarewa a fagen kimiyya da likitanci waɗanda suka fi dacewa ga iyalai da ke zaune tare da EB.
Dubi ayyukanmu
Mutane suna aiki tare a kusa da tebur cike da kwamfyutoci, takardu, kofuna na kofi, da littattafan rubutu.

Dabarun binciken mu

Sabuwar dabararmu tana sanya abubuwan fitar da marasa lafiya gaba da tsakiya, tare da mai da hankali kan binciken fassarar da zai sami tasiri mai kyau ga waɗanda ke da EB a yau.
Ya koyi
Mutanen da ke aiki akan ginshiƙi na kasuwanci da jadawali a tebur, ta amfani da kwamfutar tafi-da-gidanka, faifan rubutu, da waya.

Tasirinmu

Mu ne ke da alhakin, ta hanyar ba da kuɗin bincike na canza rayuwa, don kafa yawancin abin da aka sani game da EB.
Ya koyi
Daraktan Bincike na DEBRA, Dr Sagair Hussain.

Ƙungiyar binciken mu

Haɗu da Dr Sagair Hussain - Daraktan Bincike da Dr Abi Witherden - Manajan Tallafin Bincike.
Sadu da tawagar
Hannaye biyu sanye da farin safar hannu, alamar kiwon lafiya da abokan bincike, suna girgiza hannu akan bangon duhu.

Abokan bincikenmu da masu haɗin gwiwa

Muna haɗin gwiwa kuma muna aiki tare tare da ƙwararrun ƙwararrun ƙwararrun duniya da ƙungiyoyi waɗanda ke da sha'awar EB da sauran yanayin fata.
Haɗu da abokan hulɗarmu
Mutumin da ke sanye da fararen kaya, mai kama da wani daga filin gwaji na asibiti, yana riƙe da kwayar jan jan a hannun hagu da kuma ƙwayar shuɗi a dama, dabino yana fuskantar sama.

Gwajin gwaji

Nemo bayanai game da gwaje-gwajen asibiti, kimiyyar da ke bayan binciken EB, yadda aka amince da magunguna, da sauran albarkatu masu amfani.
Ya koyi
Mutum yana riƙe da wayar hannu yana ɗaukar hoton duniya da aka lulluɓe da launuka daban-daban na fuskokin mutane.

Nazarinmu na fahimta

Waɗannan nazarin suna ba da muhimman bayanai game da buƙatun membobin DEBRA da ba a cika ba, abubuwan da suka fi muhimmanci a bincike, da kuma kimanta ayyukan membobinmu.
Nazarinmu na fahimta

Kun san…?

Idan kai mai bincike ne da ke aiki akan EB, zaku iya zama memba na DEBRA UK. Memba yana da kyauta kuma yana ba ku dama ga damar shiga da abubuwan da suka faru don haɗawa da wasu a cikin al'ummar EB.
Kasance memba na DEBRA
Logo na DEBRA UK. Tambarin ya ƙunshi gumakan malam buɗe ido shuɗi da sunan ƙungiyar. Ƙarƙashin, alamar rubutun yana karanta "The Butterfly Skin Charity.
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Bayanin Sirri

Wannan shafin yanar gizon yana amfani da kukis domin mu iya ba ku damar kwarewa mafi kyau. Ana adana bayanin kuki a cikin burauzarka kuma yana aiki da ayyuka kamar gane da ku idan kun dawo zuwa shafin yanar gizon mu da kuma taimaka wa tawagar mu fahimci wane ɓangaren shafin yanar gizon da kuka samu mafi ban sha'awa da amfani.