DEBRA UK abokan tarayya tare da Cibiyar Nazarin Ciwon daji ta UK Scotland don magance ciwon daji na farko a cikin marasa lafiya tare da RDEB

DEBRA UK, ƙungiyar ba da agaji ta ƙasa, da ƙungiyar tallafi na haƙuri ga mutanen da ke rayuwa tare da yanayin ƙwayar cuta ta fata, epidermolysis bullosa (EB), tana farin cikin sanar da sabon haɗin gwiwa na dogon lokaci na bincike tare da sanannen Cibiyar Binciken Ciwon daji ta UK (CRUK) Scotland. Cibiyar, tsohon Cibiyar Beatson, a Glasgow, UK.

Mayar da hankali na wannan sabon haɗin gwiwa na shekaru 5 shine don haɓaka samfuran ciwon daji na farko wanda zai taimaka haɓaka fahimtar ci gaban ciwon daji na fata a cikin marasa lafiya da ke zaune tare da recessive dystrophic epidermolysis bullosa (RDEB).

Marasa lafiya na RDEB suna fama da mummunan rauni na fata, dagewa da kumburin fata da rauni, kuma suna da haɗarin haɓaka da wuri-wuri, cututtukan daji na fata. Ta hanyar wannan sabon haɗin gwiwa na bincike, DEBRA UK na fatan samun kyakkyawar fahimta game da kwayoyin halitta da abubuwan da ke haifar da kwayoyin cutar daji a cikin marasa lafiya tare da RDEB, da fahimtar yadda waɗannan kwayoyin ke hulɗa tare da fata mai lalacewa.

Tare da ingantacciyar fahimtar hanyoyin da ke faruwa a lokacin samar da kwayoyin cutar daji ana fatan wannan zai iya tallafawa gano yiwuwar magungunan ƙwayoyi, ciki har da magungunan da aka sake dawowa, don ƙaddamar da waɗannan matakai, kafin gwajin asibiti na marasa lafiya.

Da yake tsokaci game da wannan sabon haɗin gwiwa, Daraktan Bincike na DEBRA na Burtaniya, Dokta Sagair Hussain ya ce:

"Mun yi farin cikin yin haɗin gwiwa tare da irin wannan ƙungiya mai daraja kamar Cibiyar CRUK Scotland, waɗanda ke da tarihin kishi a kimiyyar ciwon daji na fassara. Ciwon daji na fata zai iya zama mai lalacewa ga mutanen da ke zaune tare da RDEB amma idan za mu iya fahimtar yadda yake tasowa da kuma hulɗa da fata, to muna da damar da za a iya gano magungunan miyagun ƙwayoyi wanda zai iya taimakawa wajen rage ko dakatar da ci gaba, wanda zai iya zama. rayuwa ta canza. Ina fatan yin aiki tare da Farfesa Gareth Inman da tawagar a Glasgow don kawo canji ga mutanen da ke fama da ciwon RDEB. "

Farfesa Gareth Inman daga Cibiyar Nazarin Ciwon daji ta Burtaniya ta Scotland ya ce:

"Muna matukar farin ciki game da wannan sabon aikin ƙirar cutar daji wanda DEBRA UK ke bayarwa. Wannan shine haɗin gwiwa na farko da muka shiga don wani yanayi mai wuya kamar EB. Matsala ce mai wahala wacce ke buƙatar wata hanya ta daban amma ta hanyar gina ingantattun samfura Ina da tabbacin cewa za mu iya ƙirƙirar dandamali mai ƙarfi don gwada magungunan ƙwayoyi da aka sake amfani da su wanda zai iya taimakawa haɓaka hanyoyin da ke haifar da haɓakar cutar kansar fata a cikin marasa lafiya tare da RDEB. ”