DEBRA UK abincin rana a The Beaumont hotel tare da HRH Duchess na Edinburgh GCVO

Makon da ya gabata (Laraba 20^th Nuwamba) mun yi farin ciki da cewa Royal Patron, HRH Duchess na Edinburgh GCVO, ya haɗu da membobin ƙungiyar DEBRA, gami da Mataimakin Shugabanmu, Graeme Souness CBE, Frank Warren, Lenore England, da Stuart Procter tare da manyan magoya baya da sauran masu sha'awar aikin. na sadaka a wani taron abincin rana a The Beaumont a London.

Taron ya kasance wata dama ta samar da sabuntawa game da shirinmu na sake dawo da muggan kwayoyi, wanda Royal Patron dinmu ke ba da cikakken goyon baya, kuma ya hada da magana mai dadi daga mashawarcinmu mai zaman kansa, Farfesa Chris Griffiths OBE, inda ya sake tabbatar da yiwuwar sake dawo da miyagun ƙwayoyi ga EB. da kuma yadda zai iya canza rayuwa zuwa mafi kyau. Har ila yau, a yayin taron, Dr Su Lwin, likitan fata kuma malami mai daraja a St John's Institute of Dermatology da King's College London ya yi magana da baƙi da suka halarta game da sabon damar bincike na EB mai ban sha'awa.

Muna so mu gode wa Royal Patron don ci gaba da goyon bayan sadaka, Mataimakin Shugabanmu, Stuart Procter, da tawagar a The Beaumont don kyautata mana, Farfesa Chris Griffiths OBE da Dr Su Lwin don jawabansu, membobin DEBRA Michelle da kuma Maya Spencer-Berkeley don raba abubuwan da suka shafi rayuwa na EB, kuma a ƙarshe godiya ga mataimakan shugabanninmu da baƙi waɗanda suka haɗu da mu. Tare da ci gaba da goyon bayan ku za mu iya tabbatar da cewa a nan gaba babu wanda dole ne ya sha wahala tare da EB.