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Shafin namu wuri ne don membobin al'ummar EB don raba abubuwan rayuwarsu na EB. Ko suna da EB da kansu, kula da wanda ke zaune tare da EB, ko aiki a cikin aikin kiwon lafiya ko ƙarfin bincike mai alaƙa da EB.
Ra'ayoyi da gogewar al'ummar EB da aka bayyana kuma aka raba su ta hanyar labaran yanar gizon su na EB nasu ne. Ba lallai ba ne su wakilci ra'ayoyin DEBRA UK. DEBRA UK ba ta da alhakin ra'ayoyin da aka raba a cikin labaran labaran EB. Waɗannan ra'ayoyin na kowane memba ne.
