Kasance memba
Memba yana da kyauta kuma yana buɗewa ga duk wanda ke zaune tare da EB ko tallafawa wani tare da EB: iyaye, masu kulawa, 'yan uwa, ƙwararrun kiwon lafiya da masu bincike. A matsayin memba, za ku iya samun damar aiki mai amfani, ta motsin rai, da tallafin kuɗi, da damar haɗi da wasu a cikin al'ummar EB.
Mu ne DEBRA
Mu ne ƙungiyar goyon bayan haƙuri ga mutanen da ke fama da epidermolysis bullosa (EB) - fatar malam buɗe ido. Mu kuma muna ɗaya daga cikin manyan masu ba da kuɗi na bincike kan jiyya da magunguna na EB.
EB Taimako
Kira mana 01344 577 689. Bude Litinin zuwa Juma'a daga 8 na safe zuwa 5:30 na yamma.
Ko sami amsoshin yawancin tambayoyinku 24/7 ta amfani da mu chatbot. Kawai danna gunkin da ke ƙasan kusurwar dama na allon.
Shagunan sadaka
Ta hanyar siyayya a cikin shagunan sadaka na DEBRA, kuna taimakon mutanen da ke zaune tare da EB, tare da kasancewa masu kyau ga jakar ku da duniyarmu.
Aikace-aikacen ƙarshen mako na Membobi na 2026 yanzu suna buɗe
Za a dawo da karshen mako na Membobi zuwa Drayton Manor Resort a ranar Asabar 16 da Lahadi 17 ga Mayu. Yi rijista yanzu don samun wurin zama!
