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Isla, wacce ke zaune tare da recessive dystrophic epidermolysis bullosa (RDEB), tana wasa da kare ta. Isla, wacce ke zaune tare da recessive dystrophic epidermolysis bullosa (RDEB), tana wasa da kare ta.

Mu ne DEBRA

DEBRA wata ƙungiyar agaji ce ta bincike ta likitanci ta Burtaniya da ƙungiyar tallafawa marasa lafiya ga mutanen da ke rayuwa tare da ƙarancin fata, mai raɗaɗi, yanayin ƙwayar cuta, epidermolysis bullosa (EB) wanda kuma aka sani da 'fatar malam buɗe ido'.

Taimakawa ga Al'ummar EB

Kuna son shiga cikin al'umma?

Muna da ƙungiyar sadaukarwa don tallafawa mutanen da ke zaune tare da EB ta hanyar ba da bayanai da shawarwari tare da tallafi mai amfani, kuɗi, da kuma motsin rai. Kasancewa memba kyauta ne kuma yana ba da damar haɗi tare da wasu da ke zaune tare da EB.

zama memba

Idan akwai gaggawa

Kuna buƙatar kulawa na gaggawa? A cikin kiran gaggawa 999.

Don tuntuɓar waɗanda ba na gaggawa ba Bayanan NHS 111 ko GP ku.

Bayanin gaggawa
 

Ciki na shagon sadaka na DEBRA yana ba da zaɓin zaɓi na tufafi da sauran abubuwa.

Shagunan sadaka

Ta hanyar siyayya a cikin shagunan sadaka na DEBRA, kuna taimakon mutanen da ke zaune tare da EB, tare da kasancewa masu kyau ga jakar ku da duniyarmu.

Sarah, wacce ke zaune tare da EB, tana da dogon gashi kuma tana sanye da rigar shudi mai haske.
Sabon roko

Tabo maras gani

Taimakon lafiyar kwakwalwa ga mutanen da ke zaune tare da EB ba za su iya jira ba. Shin za ku taimaka don tabbatar da cewa babu wanda ke fuskantar ƙalubalen EB kadai?

Abubuwan DEBRA

Dan wasan rugby a cikin farar riga mai wakiltar taron "Lunch with Mike Tindall MBE" yana gudana yayin da yake rike da kwallon rugby yayin wasa.

Abincin rana tare da Mike Tindall MBE 2025

Yayin da kasar ke jin dadin gasar cin kofin kasashe shida, sai ku kasance tare da mu don cin abinci na musamman a ranar Alhamis 27...
Ya koyi
David Williams daga Kungiyar Tallafawa Al'umma ta DEBRA EB, suna karbar bakuncin taron maza a karshen mako na Membobi 2024.

Ƙungiyar Maza DEBRA - Disamba 10

Mun san daga tattaunawa da membobinmu cewa maza a wasu lokuta suna fama don yin magana game da yadda suke ji da samun damar ...
Ya koyi
Gaban bakin teku tare da mutane akan yashi da ruwa, jeri na gine-gine, hasumiya mai tsayi mai tsayi, da sararin sama a bango. Daga cikin yanayin da ake ciki, banners na "Brighton Marathon 2025" suna shawagi a hankali cikin iska.

Marathon Brighton 2025

Haɗa #TeamDEBRA don Marathon Brighton 2025! Farawa a Preston Park, hanyar tana ɗaukar ku cikin birni kuma ta wuce wasu daga cikin Brighton's ...
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Sabbin labarai & bulogi daga DEBRA

Katie White, Jamie White da Tom Holland.

Amintacciyar Brotheran'uwa ta shirya wani keɓaɓɓen nuni na Spider-Man tare da Tom Holland

Ya koyi
Wasu mutane takwas ne wasu a durkushe wasu kuma a tsaye, cikin farin ciki suka fito a kofar shiga shago dauke da kalamai kala-kala.

DEBRA ta sami nasarar Zuba Jari a cikin ma'auni mai inganci

Ya koyi
Jasmine Ritchie tana yin ado da kwalliyar kwali ta amfani da manne. Daban-daban kayan sana'a da rigar tebur tare da alamu na fure suna bayyane akan tebur.

Kalubalen mai fasaha na fasaha

Ya koyi